What we've been doing lately, aside from slacking on this poor little 'ole blog, in bullet form:
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| I am in love with Michael's new kicks! |
- Doctor's appointments for the boy - MRIs, x-rays, neurologists, orthotics, physical medicine, pediatrician, neurosurgeon, dentist....you name it, we've probably seen a doctor for it in the last 2 months. And there's 4-5 more appointments to go before Thanksgiving.
- Insurance...and all the paperwork and headaches that go with them not paying what they should and trying to come up with the money for what they don't cover.
- School and all that goes with it.
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| We heard Michael sneak out of his room after bedtime and we found him reading a comic book (The Simpson) at the top of the stairs with his partner in crime. |
- Conductive Education, a unique therapy-like program from Hungary that Michael has been participating in during the summer and after school. We're thinking of signing him up for their 5-week/4 hours a day program starting in January...but have to figure out how to get him out of school without penalizing him. We're also applying for a grant to help fund his therapy. It's $1,200-$1,700 per session depending on the session type and the hours in that session...and our insurance company doesn't cover this program (nor does any other insurance company in the US).
- Continuing to have Michael self-feed...he's getting better at it, but we have to keep an eye on him because sometimes he'll feed the top of his head or the dog.
- I'm starting a photography business...so I'm testing the waters with my tippy toes by doing some portfolio building. Getting my business plan and marketing and websites/social media up and running.
- I was able to attend one of my nephew's football games, finally (usually Gary goes to the games and I stay home with Michael, but the last game of the season was free and we thought we'd try it as a family). Michael would have liked it more without the announcer (not sure what it is about the loudspeaker voices, but they really upset him). He did great otherwise and loved to cheer and clap.
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| That's our nephew with the fumble-recovering-game-winning play, in OT no less!! Go Dillon!! |
- Attempting to keep the house clean...or at least making sure we have food and clean underwear.
- Michael's name/number came up for our state/county's waiver program that will help with medical bills, so we've started the application process...it takes about 3 months to complete and become officially approved. We're just starting the 2nd month - hoping for a January start date.
- Volunteer work with the Care Train (an organization that raises money and provides toys and food vouchers for needy local families at Christmas). I'm on the auction team, so I solicit businesses for donations of goods and services and money. This year was a record breaker: we raised over $150,000 for our community....we love our hometown (except for the cold weather!)
- Volunteer work with Brighter Beginnings, where Michael receives Conductive Education. I helped redesign their website and they've asked me to join their Board of Directors. It is my hope to help make a difference for Michael and all the kids.
- Halloween was a success for Michael. He stayed out and watched the kids trick-or-treat for almost an hour - his longest yet. He cheered for the Buzzes, Woodys, and princesses. :) He was dressed as an astronaut.


- Working on cleaning closets, going through clothes & toys, trying to get rid of stuff before we're trapped inside with tons of crap all winter long....and suffocating.
- In between all the craziness, we went to Florida for vacation. It was nice and we had great weather. Lots of time for Michael to play in the sand and the water. It was relaxing, but it took a TON of work to make it happen, if that makes any sense. You know I'll blog more about this later, with lots of pictures.
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| Yes, he buried himself in the sand... |
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| ...and he had a GREAT time doing it! |
Hopefully, I'll be back sooner rather than later to share more stories.
2 comments:
Him reading the funnies cracked me up. The other day G was really quiet, and when I peeked in on her she was "reading" a People magazine. lol
:) our little readers....love it!
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